| 刘颖,赵宏,陈丽霞,杜晓娟,张建平,华宝来.成年血友病患者生活质量及其影响因素分析[J].中国康复,2017,32(1):33-36 |
| 成年血友病患者生活质量及其影响因素分析 |
| Quality of life in adult patients with hemophilia and influencing factors |
| |
| DOI： |
| 中文关键词: 血友病 生活质量 关节健康 |
| 英文关键词: haemophilia quality of life joint health |
| 基金项目: |
|
| 摘要点击次数: 11651 |
| 全文下载次数: 8763 |
| 中文摘要: |
| 目的：了解中国成年血友病患者的生活质量（QOL）现状并探讨其可能的影响因素。方法：选取成年男性血友病患者72例。分别采用健康状况调查问卷（SF-36）、血友病功能独立性评分（FISH）和血友病关节健康评估表（HJHS）对患者进行QOL、日常生活活动能力（ADL）及关节健康状况的评估。结果：72例患者SF-36评分为（422.04±143.19）分，其中躯体健康所致的角色受限（RP）评分最低（20.21±12.96）分。SF-36总分及躯体功能（PF）评分与患者文化程度和FISH评分呈正相关（P＜0.05）。SF-36总分与受累关节数、HJHS总分及其中关节周围肌肉状况、关节活动度、关节疼痛、关节摩擦音评分呈负相关（P＜0.05）。PF评分与患者年龄、受累关节数、肌肉出血部位数、HJHS总分及肌肉状况、关节活动度、关节疼痛、关节摩擦音和步态评分均呈负相关（P＜0.05），且与HJHS总分和肌肉评分的Pearson系数也较高。结论：成年血友病患者QOL低下，受累关节数量、关节健康状况、ADL能力和文化程度与其PF和QOL密切相关。减少关节出血，改善关节健康状况，尤其是加强肌肉力量训练，提高ADL能力和受教育程度可能有助于提高患者QOL。 |
| 英文摘要: |
| Objective: To investigate the quality of life (QOL) in adult patients with haemophilia and the influencing factors. Methods: Seventy-two male adult patients with haemophilia were recruited. Their quality of life (QOL), activities of daily living (ADL) and joint health status were assessed respectively using the short form-36 health survey (SF-36), the functional independence score in haemophilia (FISH) and the haemophilia joint health score (HJHS). Results: The average SF-36 score in all patients was 422.04±143.19. The score of role limitations due to physical health (RP) which was 20.21±12.96, was the lowest. There was a positive correlation between the total SF-36 score and the PF score with the FISH score and the level of education (P<0.05). There was a negative correlation between the total SF-36 score with the number of joint hemorrhage, the scores of total HJHS, muscle strength around joints, joint pain, crepitus and range of motion (ROM) (P<0.05). There was also a negative correlation between the PF score with the patients' age, the number of joint hemorrhage and muscle hemorrhage, the scores of total HJHS, muscle strength around joints, gait, joint pain, crepitus and ROM (P<0.05), with a high Pearson correlation coefficient in HJHS and muscle strength. Conclusions: The QOL was low in adult patients with haemophilia. The number of affected joints, joint health status, ADL and the degree of education were closely related to the QOL and the PF. Reducing joint hemorrhage, improving joint health status, in particular, strengthening muscles, improving the ability of ADL and the degree of education may be helpful to improve patients' QOL. |
|
查看全文
下载PDF阅读器 HTML全文 |
| 关闭 |
|
|
|
