Abstract
Quality of life and related impact factors in children with hemophilia
  
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EN KeyWords: hemophilia  children  quality of life
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作者单位
刘颖 中国医学科学院北京协和医学院北京协和医院物理医学康复科北京 100730 
陈丽霞 中国医学科学院北京协和医学院北京协和医院物理医学康复科北京 100730 
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EN Abstract:
  Objective:To investigate the quality of life (QOL) and related impact factors in children with hemophilia.Methods:Sixty boys with hemophilia and their householders were assessed by the Chinese pediatric quality of life inventory measurement models (PedsQL)4.0.Results:The total and sub-item scores of PedsQL 4.0 in the householders were significantly higher than in children with hemophilia (all P<0.05).There was a positive correlation between ages of children and their scores of PedsQL4.0,especially the scores of physical functioning (all P<0.05).Conclusion:The satisfaction degree of the householders is lower than that of the children with hemophilia.The older the children are,the lower their QOL scores are,especially physical function.Children with hemophilia should be controlled earlier and treated sufficiently.
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